Long time ago I had a massive stroke. 2010. It was my
introduction to a host of new medical devices. There was the transesophageal
echocardiogram. All you get is a numbed throat while the camera goes down and
looks at the heart for clots. On the other hand, you can squirm a bit and see
the screen, too.
I had an internal bleed along the way, so there was a gastrointestinal endoscopy, which found nothing, down through my stomach. I swallowed a camera to go the rest of the way. The last procedure before I was sprung from the hospital was an electroencephalogram, to check for a past seizure.
I had an internal bleed along the way, so there was a gastrointestinal endoscopy, which found nothing, down through my stomach. I swallowed a camera to go the rest of the way. The last procedure before I was sprung from the hospital was an electroencephalogram, to check for a past seizure.
In 2010 the EEG was conducted with a gritty paste to enhance
the electrode’s conduction. It took three shampoos to get the nastiness out of
my hair. All these tests simply enhanced the skills of the operators; the
source of the clot was never located, the source of the internal bleed not
located, and no evidence ever of a seizure. My life returned to normal.
Then one day last March, the Red Bus sent me down the aisle
and fractured my skull. Several times during the week I was kept unconscious in
George Washington University Hospital I “dreamed” glass beads were falling and
clicking against each other. When my neurologist
here at home scheduled a follow up EEG I realized the source of the clicking;
it was the technician recording brain patterns with the mouse. And still, no
seizure evidence.
Now I have a new neurologist. My old neurologist became so
frustrated with the state of medicine he followed his dream and is doing
research at OSU. I almost said he found medicine ‘seized up’, but I didn’t.
The new neurologist wants all tests done over. Old patient
resists; all have been done in the last six months or so. “I won’t release you
to drive,” says new neurologist. Old patient laughs. “You cannot quit Keppra,”
says new neurologist. Old patient submits to new brain MRI. At the next office
visit, new neurologist says brain MRI is pretty close to perfect, but he needs
an EEG.
I’m obviously unhappy with this; my last EEG is still pretty
hot off the press, and fine. No, he needs to see the recording. Knowing George
Washington sent complete medical records to all and sundry, I told him to check
with them. I know I kvetched here recently on learning he spent a month not
getting the record.
On Monday, in the middle of a hot pinochle game with the
Methodists, his assistant called me. There were no EEG’s at GWUH. Long pause.
Several retorts came to mind. I considered the hopelessness of explaining glass
beads, so I said “Now what?”
“Doctor would like you to come in for an EEG.”
It’s scheduled. I wonder how many more EEG’s I can have
before Medicare cuts me off. I wonder who’s making the money, here while I have
nightmares from Keppra.
On the other hand, medicare payments aside, I like a doc who want's to see the raw data, and the most current. It's a good sign you have a doc that's interested in you, and is at that plateau we reach when we're at the top of our game. I remember that time, I'd do the same.
ReplyDeleteI was interested he said he wanted to see where all the dots were, himself. But all the left hands can't reach the right hands to get the job done, and in the meantime, I'm the one dreaming of dead soldiers. This will end. Thanks for checking in.
DeleteHari OM
ReplyDelete...**&&^&^^^(()))(*#^##$%%$#*)(#*^^#$*^&#$,,,,
There, I said it for you.
YAM xx
If I were you, I'd give one last shot at contacting GW Hospital yourself to ascertain what happened to the last EEG result. You have rights!
ReplyDeleteHospital records can be inaccurate. It’s worth another shot?
ReplyDeleteI'd agree with Silver Willow, first off. Then if still not available, I'd just suck it up and have the new EEG done. It's the doctor's responsibility to make sure you have no condition that would affect your driving without the Keppra, and we can't fault him for doing his job. But yes, I wonder why communication is not better. It's frustrating when those things go awry. I'm sorry you are having nightmares. That's not any fun at all.
ReplyDeleteI always wanted a pinochle game when I was a kid. I played at someone else's house - once - and never had another chance. Maybe I need to find a senior's group that has one, seeing as we have no Methodists here :)
OY!
ReplyDeleteLeo is undergoing something similar...
ReplyDeleteResponsibility for his less life threatening problems has been handed over to the local hospital where his doctor wants him to undertake all the stuff he has recently undertaken at the main hospital...as he wants to see for himself. No problem with accessing records...he just wants to see for himself...
I'm going in for an EEG at the end of the month. As you know I have epilepsy so I do have seizures if I don't take my medicine. They have never found any seizure activity for me. That sticky paste you spoke of is far superior to the way they used to do it. They used to insert little electrode needles directly into all those places on the head and one in each earlobe. They didn't hurt but I'll take the paste any day.
ReplyDeleteNo records at GW?? That's weird. There has to be some somewhere. Perhaps they've lost them and don't want to admit that. Or they sent them and now they're sitting somewhere in a post office where they fell down behind a cabinet or something. You'd think something so important would get sent by courier.
ReplyDeleteThank goodness I was sedated for when they transesophageal echocardiogram, I had no idea they did them to anyone who was not sedated. Maybe I was sedated because they were going to shock my heart back into rhythm.
ReplyDeleteIs there any way you can check on your previous records and try to have them sent to you personally, instead of the doctor/hospital? They are your records, you paid for them.
Hope this sorts itself out soon....Nightmares are no good at all. Be well!
ReplyDeletePinochle? If you're winning pretty regularly, skip the EEG. If you are losing, get the tests! Just kidding.
ReplyDeleteNeurologists tend to be pretty detail oriented. I'd go with the tests. Maybe he trusts his people, labs, etc more than others. If Medicare doesn't complain, go with it!
Argh ... how frustrating! I saw a neurologist last week, and she also wants a brain MRI done. But as it's just precautionary, I will be at the bottom of the list, and it will take some time. But she did tell me that an MRI will always show something, and that is just the way it is. So your comment about a perfect MRI stood out to me.
ReplyDeletehope you get results,one way or another xx
ReplyDeleteDue to my fall in 2011, head injury, subsequent 3 brain surgeries......I had numerous MRIs of my head.....let me just say that I hated each and every one of them.
ReplyDeleteI am so sorry that you have to go through more of this.
ReplyDeleteSheesh. Really sorry you'll have to endure this all over again.
ReplyDeleteI believe I'd be on the phone to GWUH myself raising hell until I got the medical record. Didn't they send you a statement of tests done? I got them when I was having all the tests for the swallowing and choking thing, disguised as a bill that zeroed out at the bottom. I don't blame you for not wanting to go through all that again.
ReplyDeleteGW actually has passed out these records to all and sundry who presented a signed authorization, and our three different hospital systems here won't share. First problem. Second, I have raised hell with GW for this doctor, to little result. GW takes requests in person or in the mail. My grocery runs a tighter ship. My car shop runs a tighter ship. I'm the one always on the wrong conveyor line. I hate it.
DeleteThat's a bummer, Joanne.
ReplyDeleteI am so sorry. I go in for a CT scan Monday, and I hope they don't over do me like they are doing with you.
ReplyDeleteI am so passive aggressive, I would call Medicare to see if GWUH charged them for an EEG. If they charged for it, they ought to have it around there there somewhere, and if they can't find it, Medicare ought to not pay that bill. But, that's just me.
ReplyDeleteI can look in my Medicare account...for all the EEG's they've paid for. I could go round to everyone and get a copy, not only of the report, but a disc of the beads dropping. I've done that already for an x-ray of the shoulder I hope to get fixed. They can mail the results. They won't send the actual data by email or by fax, claiming "their/our" lines are not secure. This is 2018, for godssake, Russia has secure lines, why don't we.
DeleteYou've been through the mill and back again...unfair.
ReplyDeleteNo wonder medical costs are so high! This drives steam out my ears just reading about your experiences!
ReplyDeletethis cheered me up: "in the middle of a hot pinochle game with the Methodists,". Pretty rough group.